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Thursday, February 4, 2010

Landon's latest

It's looking like it's going to be at least another year before we even get close to figuring out what's going on with our little buggy. He's going to have another year of tests and dr's visits. The good news is that we are eliminating all sorts of things. We found out that he doesn NOT have Celiac Disease, his Thyroid is fine, and everything came back normal in his blood work except for that he is allergic to milk which I had already guessed on my own. And now the not so good news. Apparently Landon's neurosurgeon didn't think it was important to tell us that part of Landon's brain didn't develop normally. The only reason we even know this now is because the pediatric developmental specialist that we were referred to told us that it was on the report from his last MRI. She's amazing by the way. Really the best dr we've seen so far. She's going to work with us while we get Landon genetic testing done and another MRI. Which will all be done this summer and fall. The MRI that Landon had in October showed the abnormal development but the radiologist said that since babies brain continue to mature until they are 2 we'd have to get another one done around his 2nd birthday. It will be more definitive and we'll be able to move from there. Now the reason for the genetic testing is to determine if Landon's developmental delays and his brain are something genetic. It's all really complicated . He'll also be getting his eyes checked, and getting a swallow test that will determine if he needs a feeding therapist. He'll also be getting a sleep test done because he wakes up in the middle of the night thrashing around in his bed and banging his head on the crib bars. It's all really overwhelming and we don't really want to freak out but there is a chance that he'll struggle for the rest of his life. We aren't going to freak out until we know for sure. Like I said this can take a loooooong time to figure out. For now we are just happy that he's happy. He's doing all the right things, just late. He's really close to walking. He's already taken a few steps and he's getting alot more confidence. He's into everything, and I mean EVERYTHING!!!
So we'll keep everyone updated as we go along. Not a lot we can do right away. A lot of things have to wait until he's 2. Actually it will probably come a lot sooner than it sounds considering he'll be 18 months old on the 15th!!! He's still my little baby. Cute as can be and definately lots of fun!

2 comments:

Unknown said...

I am so glad you have found a good doctor! Nicole you are an awesome mom! You are handling everything so well! I hope things will get easier for Landon but if anyone can help him through it, it's his mommy and daddy! I just am so impressed with you Nicole and I just wanted to let you know that.

Jennie said...

Wow. Nicole, your optimism amazes me--really. It breaks my heart to think of little Landon and what you're going through and tears come to my eyes thinking about if it were my boys and your attitude is just awesome! I love you and you guys are always in my prayers! Keep staying strong!